Way back in the day when it was common to walk down the street and see street teams battling for props, aka the 80’s, Martin Pistorious was fighting for his life. At 12-years-old became seriously ill with what doctor’s believed was Cryptococci Meningitis. His health began deteriorating and it wasn’t long before Martin lost his ability to move, make eye contact and even speak to others. His parents, Rodney and Joan Pistorious, were told by physicians to take him home and let him die. They told them he was as good as a vegetable.
But God… Martin..he didn’t die.
Joan said, “Martin just kept going, just kept going.”
According to NPR news, his father would get up at 5 o’clock in the morning, get him dressed, load him in the car, take him to the special care center where he’d leave him. Rodney said, “Eight hours later, I’d pick him up, bathe him, feed him, put him in bed, set my alarm for two hours so that I’d wake up to turn him so that he didn’t get bedsores.”
For twelve years, Martin’s family cared for him without any sign that he was improving. Joan started to despair and even told her son, “I hope you die.”
Today she acknowledges that was a horrible thing to say but says she just wanted some sort of relief. This is a no judgement zone and I can completely empathize with what Joan was going through. Miraculously, now Martin is 39-years-old and says he was totally aware of everything going on around him.
He said, “Yes, I was there, not from the very beginning, but about two years into my vegetative state, I began to wake up. I was aware of everything, just like any normal person. Everyone was so used to me not being there that they didn’t notice when I began to be present again. The stark reality hit me that I was going to spend the rest of my life like that — totally alone.”
Unfortunately, Martin was even aware of his mother’s harsh words and began believing that no one would ever love him. He said, “You don’t really think about anything. You simply exist. It’s a very dark place to find yourself because, in a sense, you are allowing yourself to vanish.”
Martin spent most of those days at a care center where his caregivers played Barney reruns over and over again. They did this because they believed he was a vegetable too. He said, “I cannot even express to you how much I hated Barney.”
But eventually, Martin became frustrated with being trapped in his own body and started to try and take control of his life. He learned to tell time by the rising and setting of the sun and would reframe even the ugliest of thoughts that haunted him like his mother’s wish for him to die. “As time passed, I gradually learned to understand my mother’s desperation. Every time she looked at me, she could see only a cruel parody of the once-healthy child she had loved so much,” said Martin.
Now Martin is married and has penned a memoire about his life. He has gained control of his body and in his book Ghost Boy, he writes, “My mind was trapped inside a useless body, my arms and legs weren’t mine to control and my voice was mute. I couldn’t make a sign or sounds to let anyone know I’d become aware again. I was invisible—the ghost boy.”
Martin’s survival is a testament to how little we actually know about the human brain and a good reminder that we should value all life— even when we hear the terrifying words “your loved one is a vegetable” or in a “vegetative state” from a medical professional.
This article originally appeared in Life News and it resonated with me because it tapped into how tenacious we are as human beings. We are just beginning to understand our forces and the power of the mind and this was just fascinating. This is also a testament to the power of the soul and spirit. Those that are disabled in any capacity are very much aware and receptive, they are just processing it in a way that is foreign to us. So always be kind because the Spirit is forever alive and receptive. As for you, YOU ARE POWERFUL and can change EVERYTHING in your life. This man did when his vessel was completely shut down!
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